Pathfinders Neuromuscular Alliance

Charity number: 1155884
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Our main activity is to provide advice and information to adults living with Muscular Dystrophy and related neuromuscular conditions via information events, guides and resources, and peer support activity. We also raise awareness of issues facing adults with neuromuscular conditions and provide advice on health research committees and steering groups

Income and expenditure

Data for financial year ending 05 April 2025

Total income: £271,413
Total expenditure: £218,208

People

4 Trustee(s)

1 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
How the charity helps:
  • Makes Grants To Individuals
  • Provides Services
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales
  • Scotland

Governance

Registration history:
  • 21 February 2014: CIO registration
Organisation type:
CIO
Other names:
  • DMD PATHFINDERS (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints policy and procedures
  • Conflicting interests
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Sarah Rose Chair 21 November 2020
None on record
DANIEL BAKER Trustee 08 November 2024
None on record
Andrew Tunks Trustee 02 October 2024
PAROCHIAL CHURCH COUNCIL OF THE ECCLESIASTICAL PARISH OF ST MARYS THEYDON BOIS
Received: On time
THEYDON BOIS UNITED CHARITIES
Received: On time
MRS Independent Living
Received: On time
Vicky Mozley Trustee 16 May 2021
None on record

Financial history

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Financial period end date

Income / Expenditure 05/04/2021 05/04/2022 05/04/2023 05/04/2024 05/04/2025
Total gross income £86.59k £244.06k £180.10k £232.20k £271.41k
Total expenditure £57.23k £135.37k £171.82k £180.26k £218.21k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A £7.57k N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 05 April 2025 08 December 2025 On time
Accounts and TAR 05 April 2025 08 December 2025 On time Download Open in new window
Annual return 05 April 2024 06 January 2025 On time
Accounts and TAR 05 April 2024 06 January 2025 On time Download Open in new window
Annual return 05 April 2023 07 November 2023 On time
Accounts and TAR 05 April 2023 07 November 2023 On time Download Open in new window
Annual return 05 April 2022 14 December 2022 On time
Accounts and TAR 05 April 2022 14 December 2022 On time Download Open in new window
Annual return 05 April 2021 29 November 2021 On time
Accounts and TAR 05 April 2021 29 November 2021 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - Association Registered 21 Feb 2014 as amended on 27 Aug 2020

Charitable objects

1.The promotion of social inclusion of people with neuromuscular conditions who are socially excluded from society, or parts of society as a result of having Muscular Dystrophy and related neuromuscular conditions by 1. Providing a network of groups that encourage and enables them to participate more effectively with the wider community, 2. Increasing or co-ordinating opportunities for them to engage with organisations and service providers to enable those providers to adapt services to better meet their needs, 3. Raising public awareness of the issues affecting them in all areas relating to having a neuromuscular condition, 4. Providing support to those between the age of 18 and 30 who are socially excluded to establish and grow a business or enterprise to relieve their needs and assist them to integrate into society. 2. To promote and protect the physical and mental health of people with Muscular Dystrophy and related neuromuscular conditions in the United Kingdom as the trustees shall determine.

Contact information

Address:
103 London Road
HAILSHAM
East Sussex
BN27 3AH
Phone:
07856207351
Email:
info@pathfindersalliance.org.uk
Website:

https://www.pathfindersalliance.org.uk Open in new window