UNITED KINGDOM PRIMARY IMMUNODEFICIENCY NETWORK

Charity number: 1164466
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The main objectives of UK PIN are the development of best practice guidance, maintenance of patient registry and advancement of education in primary immunodeficiency. The charity seeks to achieve its objectives by aiming to improve patient care through standardisation of care based on evidence and enhanced understanding of disease.

Income and expenditure

Data for financial year ending 30 June 2024

Total income: £0
Total expenditure: £1,048

People

4 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

No information available

Trustee payments

No information available

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • The General Public/mankind
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 18 November 2015: Standard registration
Organisation type:
Charitable company
Other names:
  • UKPIN (Working name)
Company number:
09273983 Open in new window
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Conflicting interests
  • Risk management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Dr Fiona Culley Chair 20 December 2022
BRITISH SOCIETY FOR IMMUNOLOGY
Received: On time
James Lowe Trustee 20 December 2022
BRITISH SOCIETY FOR IMMUNOLOGY
Received: On time
DACORUM COUNCIL FOR VOLUNTARY SERVICE
Received: On time
Dr Doug Brown Trustee 20 December 2022
None on record
Otto Balsiger Trustee 20 December 2022
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2020 31/12/2021 31/12/2022 30/06/2023 30/06/2024
Total gross income £72.00k £221.00k £55.00k £0 £0
Total expenditure £103.00k £179.00k £227.00k £179.96k £1.05k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 June 2024 10 October 2024 On Time
Accounts and TAR 30 June 2024 Not Required
Annual return 30 June 2023 10 October 2024 163 days late
Accounts and TAR 30 June 2023 Not Required
Annual return 31 December 2022 27 April 2023 On Time
Accounts and TAR 31 December 2022 27 April 2023 On Time Download Open in new window
Annual return 31 December 2021 21 October 2022 On Time
Accounts and TAR 31 December 2021 09 January 2023 70 days late Download Open in new window
Annual return 31 December 2020 11 November 2021 11 days late
Accounts and TAR 31 December 2020 11 November 2021 11 days late Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES INCORPORATED 21 OCT 2014 as amended on 01 Nov 2022 as amended on 20 Dec 2022

Charitable objects

The Objects of the Charity are, for the public benefit: • The advancement of health in particular among those with primary immunodeficiency disorders (“PID”) and related disorders and in particular but without limitation by: o Developing best-practice approaches to diagnosis and management of PID and related disorders; o Developing clinical guidelines by means of setting consensus standards based upon agreed UK best practice; o Establishing and maintaining a national patients registry; and • The advancement of education in PID and related subjects including disorders of innate and antigen-specific immunity, in particular but without limitation by promoting improved understanding of PID and related disorders among healthcare professionals, students and the public. • The support and advancement of clinical immunology through education, research, and clinical practice for the benefit of healthcare professionals, the public and patients. This provision may be amended by special resolution but only with the prior written consent of the Commission.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
9 Appold Street
London
EC2A 2AP
Phone:
02030195901
Email:
info@ukpin.org.uk
Website:

http://ukpin.org.uk/ Open in new window