MYELOPATHY.ORG

Charity Number: 1178673
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Supporting and funding scientific research into all aspects of myelopathy and ensuring the useful results are publicly disseminated. Raising awareness and understanding of myelopathy. Supporting and promoting improved physical and mental outcomes for patients and supporting patients, carers and healthcare professionals.

Income and expenditure

Data for financial year ending 30 June 2024

Total income: £74,925
Total expenditure: £75,118

People

10 Trustee(s)

15 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales
  • United States

Governance

Registration history:
  • 06 June 2018: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Internal charity financial controls policy and procedures
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

10 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Helen Wood Chair 07 November 2019
None on record
Dr Rory Murphy Trustee 25 November 2024
None on record
Dr Aditya Vedantam Trustee 13 November 2024
None on record
Dr Benjamin Davies Trustee 13 November 2024
None on record
Steven Czick Trustee 27 June 2024
None on record
Dr Eldrid Herrington Trustee 22 May 2023
None on record
Roy Smith Trustee 06 January 2023
None on record
Iwan Lloyd Sadler Trustee 15 March 2021
None on record
Carol Sun-Schuster Trustee 27 February 2020
THE CHURCH AND MEDIA NETWORK
Received: On time
Dr MARK KOTTER Trustee 06 June 2018
None on record

Financial history

" role="img"> Text alternative for this canvas graphic is in the data table below.

Financial period end date

Income / Expenditure 30/06/2020 30/06/2021 30/06/2022 30/06/2023 30/06/2024
Total gross income £33.73k £123.28k £81.61k £79.22k £74.93k
Total expenditure £29.87k £75.35k £82.34k £97.41k £75.12k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 June 2024 08 April 2025 On Time
Accounts and TAR 30 June 2024 08 April 2025 On Time Download Open in new window
Annual return 30 June 2023 19 March 2024 On Time
Accounts and TAR 30 June 2023 20 March 2024 On Time Download Open in new window
Annual return 30 June 2022 25 April 2023 On Time
Accounts and TAR 30 June 2022 25 April 2023 On Time Download Open in new window
Annual return 30 June 2021 27 April 2022 On Time
Accounts and TAR 30 June 2021 27 April 2022 On Time Download Open in new window
Annual return 30 June 2020 19 April 2021 On Time
Accounts and TAR 30 June 2020 19 April 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 06 Jun 2018

Charitable objects

TO ADVANCE HEALTH AND EDUCATION IN ALL ASPECTS OF MYELOPATHY IN PARTICULAR BUT NOT EXCLUSIVELY BY: 1. SUPPORTING AND FUNDING SCIENTIFIC RESEARCH INTO ALL ASPECTS OF MYELOPATHY AND ENSURING THE USEFUL RESULTS OF SUCH RESEARCH ARE PUBLICLY DISSEMINATED; 2. RAISING AWARENESS AND UNDERSTANDING OF THE CONDITION IN ALL ITS FORMS INCLUDING SHARING CURRENT RESEARCH AND HEALTHCARE INFORMATION; 3. SUPPORTING AND PROMOTING IMPROVED PHYSICAL AND MENTAL OUTCOMES FOR PATIENTS INCLUDING ESTABLISHING SUPPORTING FOR PATIENTS, CARERS AND HEALTH PROFESSIONALS

Contact information

Address:
Lakin Rose Ltd
Oakington Road
Girton
CAMBRIDGE
CB3 0QH
Phone:
01223748405
Email:
info@myelopathy.org
Website:

www.myelopathy.org Open in new window