Stickler Syndrome UK

Charity number: 1060421
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline.

Income and expenditure

Data for financial year ending 30 September 2024

Total income: £46,388
Total expenditure: £32,619

People

3 Trustee(s)

3 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
  • Other Defined Groups
  • The General Public/mankind
How the charity helps:
  • Provides Advocacy/advice/information
  • Other Charitable Activities
Where the charity operates:
  • Throughout England And Wales
  • Ireland
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 28 January 1997: Standard registration
Organisation type:
Other
Other names:
  • DAVID PITCHER TRUST FOR YOUNG PERSONS (Working name)
  • STICKLER SYNDROME CHARITABLE TRUST (Working name)
  • STICKLER SYNDROME SUPPORT GROUP (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints policy and procedures
  • Engaging external speakers at charity events policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

3 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Sarah Catherine Maybourne Trustee 21 November 2023
HEALTHY LIVING CENTRE DARTFORD
Received: On time
COUNCIL FOR VOLUNTARY SERVICE NORTH WEST KENT
Received: On time
Ian Ernest Joslin Trustee 23 March 2023
None on record
Elaine Bruley Trustee 23 March 2023
None on record

Financial history

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Financial period end date

Income / Expenditure 30/09/2020 30/09/2021 30/09/2022 30/09/2023 30/09/2024
Total gross income £6.04k £5.74k £10.39k £11.88k £46.39k
Total expenditure £8.41k £7.77k £10.68k £8.70k £32.62k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 September 2024 06 April 2025 On Time
Accounts and TAR 30 September 2024 06 April 2025 On Time Download Open in new window
Annual return 30 September 2023 07 December 2023 On Time
Accounts and TAR 30 September 2023 Not Required
Annual return 30 September 2022 27 March 2023 On Time
Accounts and TAR 30 September 2022 Not Required
Annual return 30 September 2021 01 July 2022 On Time
Accounts and TAR 30 September 2021 Not Required
Annual return 30 September 2020 18 June 2021 On Time
Accounts and TAR 30 September 2020 Not Required
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 29 NOVEMBER 1994 AS AMENDED ON 18 JANUARY 1997 as amended on 11 Oct 2023

Charitable objects

TO PROTECT AND PRESERVE HEALTH BY INFORMING THE PUBLIC OF THE DANGERS OF RETINAL DETACHMENT AND THE IMPORTANCE OF EARLY DIAGNOSIS AND TREATMENT; TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF STICKLER SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY; TO RELIEVE PERSONS SUFFERING FROM STICKLER SYNDROME AND ASSOCIATED CONDITIONS.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
30 Juniper Close
MAIDSTONE
Kent
ME16 0XP
Phone:
08000668273
Email:
contact@stickler.org.uk
Website:

www.stickler.org.uk Open in new window