RESTLESS LEGS SYNDROME-UK/EKBOM SYNDROME ASSOCIATION

Charity number: 1140744
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Our primary focus is to raise awareness of RLS, to provide information and support to those living with RLS and to improve the quality of RLS care. Our website has up to date information for people with RLS and for professionals. Small research grants are offered and where possible training information for clinicians.

Income and expenditure

Data for financial year ending 05 April 2024

Total income: £21,622
Total expenditure: £19,852

People

6 Trustee(s)

3 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • People With Disabilities
  • The General Public/mankind
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 09 March 2011: Standard registration
Organisation type:
Other
Other names:
  • RLS-UK/ESA (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Dr Julian Thomas William Spinks Chair 01 September 2019
None on record
Barrie Limond Trustee 05 October 2024
FRAMLINGHAM LIVESTOCK ASSOCIATION
Received: On time
Dr Emma Sanderson-Nash Trustee 08 October 2023
None on record
Jonathan Wickens Trustee 07 October 2023
None on record
Debbie Abrams OBE Trustee 09 October 2021
None on record
Julie Gould Trustee 09 October 2021
None on record

Financial history

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Financial period end date

Income / Expenditure 05/04/2020 05/04/2021 05/04/2022 05/04/2023 05/04/2024
Total gross income £10.50k £8.08k £10.06k £16.65k £21.62k
Total expenditure £4.33k £2.17k £5.21k £17.02k £19.85k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 05 April 2024 13 October 2024 On Time
Accounts and TAR 05 April 2024 Not Required
Annual return 05 April 2023 25 October 2023 On Time
Accounts and TAR 05 April 2023 Not Required
Annual return 05 April 2022 09 March 2023 32 days late
Accounts and TAR 05 April 2022 Not Required
Annual return 05 April 2021 30 November 2021 On Time
Accounts and TAR 05 April 2021 Not Required
Annual return 05 April 2020 13 February 2021 8 days late
Accounts and TAR 05 April 2020 Not Required
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 30 AUGUST 2008 AS AMENDED 15 JANUARY 2011 as amended on 09 Oct 2021

Charitable objects

THE CHARITY'S OBJECTS ARE TO PROMOTE THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH OF PERSONS SUFFERING FROM RESTLESS LEGS/EKBOM SYNDROME, THEIR CARERS AND FAMILIES, FOR THE BENEFIT OF THE PUBLIC, PARTICULARLY BY NOT EXCLUSIVELY BY: 1) PROVIDING RESPONSIBLE AND USEFUL INFORMATION AND SUPPORT ON THE ILLNESS AND RELATED AREAS; 2) INCREASING AWARENESS OF THE CONDITION AND ITS EFFECTS WITHIN THE GENERAL PUBLIC AND AMONG THE MEDICAL PROFESSION; 3) PROMOTING USEFUL RESEARCH INTO RESTLESS LEGS SYNDROME AND THE DISSEMINATION OF THE USEFUL RESULTS OF SUCH RESEARCH

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
PO BOX BOX 11084
GRANTHAM
NG31 0LN
Phone:
00000000000
Email:
debbie.membership.rlsuk@btinternet.com
Website:

www.rls-uk.org Open in new window