Mae'r adroddiad gan yr elusen wedi'i ddiweddaru (175 diwrnod yn hwyr)
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CIO - FOUNDATION REGISTERED 25 JUN 2019
AMENDED ON 20 DEC 2019
Gwrthrychau elusennol
THE OBJECTS OF THE CIO ARE:
THE PRESERVATION AND PROTECTION OF GOOD HEALTH AND THE RELIEF OF SICKNESS OF PEOPLE BORN WITH IMPERFORATE ANUS (IA) / ANORECTAL MALFORMATION (ARM) AND THEIR FAMILIES IN PARTICULAR BUT NOT EXCLUSIVELY BY:
• RAISING AWARENESS OF THE ISSUES FOR BABIES BORN WITH IMPERFORATE ANUS (IA) / ANORECTAL MALFORMATION (ARM) AND THE NEED FOR HUMAN SUPPORT FOR EACH CHILD.
• THE PRODUCTION AND DISTRIBUTION OF CARE BOXES FOR FAMILIES OF NEW-BORN BABIES WITH IA/ARM, PROVIDING INFORMATION AND PRODUCTS TO HELP FAMILIES LEARN ABOUT AND COPE WITH CARING FOR THEIR CHILD.
• PROVIDING ACCESS TO COMPREHENSIVE, APPROVED RESOURCES, RELEVANT TO ALL PEOPLE AFFECTED BY IA/ARM INCLUDING THE PRODUCTION AND DISTRIBUTION OF INFORMATION VIA DIGITAL CHANNELS AND LEAFLETS THAT ARE ENDORSED BY MEDICAL PROFESSIONALS AND BODIES ACROSS THE UK
• ACCESS TO A NETWORK OF RENOWNED SURGICAL AND CLINICAL CARE PROVIDERS, FROM FAMILY DOCTORS (GP’S) THROUGH TO HIGHLY TRAINED SPECIALISTS, WITH PROGRAMS IN PLACE FOR THE TRANSITION FROM PAEDIATRIC TO ADULT CARE.
• PROVIDING MENTAL HEALTH SUPPORT FOR ADULTS, CHILDREN, PARENTS, AND FAMILIES AND THE PROVISION OF WELL LED PEER SUPPORT PROGRAMS FOR MEMBERS OF THE IA/ARM COMMUNITY.
• AN ANNUAL EDUCATIONAL CONFERENCE, BRINGING TOGETHER SPECIALIST MEDICAL PROFESSIONALS WITH FAMILIES AND ADULTS AFFECTED BY IA/ARM TO PROVIDE INFORMATION AND SUPPORT.
