Mae'r adroddiad gan yr elusen wedi'i ddiweddaru (ar amser)
Dogfen lywodraethu
Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y’i sefydlwyd. Nid dyma destun llawn dogfen lywodraethu’r elusen.
CIO - Foundation Registered 05 Nov 2015
Gwrthrychau elusennol
TO PROVIDE RELIEF TO PATIENTS AND FAMILIES IN THE UK (INCLUDING SCOTLAND AND NORTHERN IRELAND) WHO ARE AFFECTED BY SHWACHMAN-DIAMOND SYNDROME (SDS) IN PARTICULAR BUT NOT EXCLUSIVELY BY:
? PROMOTING ACCESS TO HEALTH AND EDUCATIONAL SERVICES FOR AFFECTED PATIENTS THROUGHOUT THE UK,
? SUPPORTING RESEARCH INTO THE PATHOPHYSIOLOGY OF SDS AND ITS CURRENT AND POTENTIAL TREATMENT AND THE PUBLIC DISSEMINATION OF THE USEFUL RESULTS THEREOF, AND
? PROVIDING AND ENCOURAGING OTHERS TO PROVIDE EDUCATIONAL RESOURCES AND ACTIVITIES ABOUT SDS FOR THE BENEFIT OF FAMILIES, PROFESSIONALS AND THE PUBLIC, BOTH NATIONALLY AND INTERNATIONALLY.
Rydym yn defnyddio cwcis i gasglu gwybodaeth am y ffordd rydych chi’n defnyddio Cofrestr Elusennau a Gwasanaethau Digidol y Comisiwn Elusennau, megis y tudalennau rydych chi’n ymweld â nhw.
