Activities - how the charity spends its money
Connecting families and raising awareness amongst affected families and the general public.
UK research sponsorship.
Organisation of clinicians meetings and creation of clinical/research networks.
Fundraising and fundraising support.
Attendance at Medical events and conferences.
Initiation and co-sponsorship of International FA Gene Therapy Working Group.
Income and expenditure
Data for financial year ending
30 April 2019
Total income: £91,777
Total expenditure: £15,602
Employee salaries over £60,000
No employees earn over £60k for this charity
This charity raises funds from the public but does not work with professional fundraisers or commercial participators.
This charity does not have any trading subsidiaries.
No trustees receive any remuneration, payments or benefits from the charity.