Dogfen lywodraethu THE NOAH JORDAN FOUNDATION

Rhif yr elusen: 1208933
Cofrestrwyd yn ddiweddar

Dogfen lywodraethu

Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y’i sefydlwyd.
Nid dyma destun llawn dogfen lywodraethu’r elusen.

CIO - FOUNDATION Registered 02 Jul 2024

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THE OBJECT OF THE CIO IS: FOR THE PUBLIC BENEFIT TO RELIEVE SICKNESS AND PRESERVE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF LIFE LIMITING PAEDIATRIC MITOCHONDRIAL DISEASE, IN PARTICULAR BUT NOT EXCLUSIVELY POLG RELATED MITOCHONDRIAL DISORDERS INCLUDING ALPERS HUTTENLOCHER SYNDROME, AND THEIR FAMILIES AND CARERS BY ALL OR ANY OF THE FOLLOWING MEANS: (1) THE PROVISION OF GRANTS TO PROMOTE MEDICAL RESEARCH INTO PAEDIATRIC MITOCHONDRIAL DISEASE, THE USEFUL RESULTS OF WHICH WILL BE PUBLISHED, WITH THE AIM OF FINDING A CURE AND MEDICATION TO ASSIST IN TREATMENT AND MANAGEMENT OF THE CONDITION; (2) RAISING AWARENESS ABOUT ALL AND ANY ISSUES RELATED TO PAEDIATRIC MITOCHONDRIAL DISEASE AMONG THE PUBLIC AND HEALTHCARE PROFESSIONALS; (3) PROVIDING FAMILIES LIVING WITH PAEDIATRIC MITOCHONDRIAL DISEASE WITH SERVICES, ITEMS, INFORMATION AND SUPPORT, INCLUDING FINANCIAL SUPPORT WHERE POSSIBLE.


Argraffu manylion yr elusen