Mae'r adroddiad gan yr elusen wedi'i ddiweddaru (ar amser)
Dogfen lywodraethu
Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y’i sefydlwyd. Nid dyma destun llawn dogfen lywodraethu’r elusen.
TRUST DEED DATED 02 JUN 2022
Gwrthrychau elusennol
TO RELIEVE THE SICKNESS AND TO PRESERVE AND PROTECT THE GOOD HEALTH OF PATIENTS WITH ANAPLASTIC LYMPHOMA KINASE POSITIVE (ALK+) CANCER IN PARTICULAR, BUT NOT EXCLUSIVELY, BY:
A. AWARDING GRANTS FOR RESEARCH INTO THE NATURE, DIAGNOSIS, PREVENTION AND CURE FOR ALK CANCER, THE USEFUL RESULTS OF WHICH WILL BE PUBLISHED.
B. WORKING WITH OTHER CHARITIES AND ORGANISATIONS TO CREATE CAMPAIGNS THAT WILL RAISE PUBLIC AWARENESS OF ALK CANCER;
C. ADVOCATING FOR IMPROVEMENTS TO TREATMENT AND CLINICAL TRIAL AVAILABILITY, BY LIAISING WITH GOVERNMENT, PHARMACEUTICAL COMPANIES, REGULATORY BODIES AND OTHER ORGANISATIONS;
D. IDENTIFYING AND LOCATING ALK PATIENTS AND OFFERING THEM INFORMATION AND SUPPORT;
E. THE PROVISION OF RESOURCES SUCH AS A WEBSITE AND SOCIAL MEDIA SUPPORT GROUPS THAT WILL CONNECT PATIENTS AND EDUCATE THE GENERAL PUBLIC AND KEEP THEM INFORMED OF THE MOST UP-TO-DATE DEVELOPMENTS ON THE ADVANCEMENT OF TREATMENTS AND RESEARCH, AND;
F. RAISING FUNDS FOR THE ABOVE PURPOSES.
Rydym yn defnyddio cwcis i gasglu gwybodaeth am y ffordd rydych chi’n defnyddio Cofrestr Elusennau a Gwasanaethau Digidol y Comisiwn Elusennau, megis y tudalennau rydych chi’n ymweld â nhw.
