Dogfen lywodraethu HOPE FOR HERMIONE

Rhif yr elusen: 1210847
Cofrestrwyd yn ddiweddar

Dogfen lywodraethu

Manylion am y math o ddogfen lywodraethu sydd gan yr elusen a phan y'i sefydlwyd.
Nid dyma destun llawn dogfen lywodraethu'r elusen.

CIO - FOUNDATION Registered 07 Nov 2024

Gwrthrychau elusennol

TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF THOSE DIAGNOSED WITH BETA-PROPELLER PROTEIN-ASSOCIATED NEURODEGENERATION (BPAN) AND THEIR FAMILIES AND CARERS BY: - GRANT FUNDING EXTERNAL ORGANISATIONS TO UNDERTAKE RESEARCH INTO ALL AREAS OF BPAN; - PROVIDING OR ASSISTING IN THE PROVISION OF EQUIPMENT, FACILITIES AND SERVICES NOT NORMALLY PROVIDED BY THE STATUTORY AUTHORITIES; - PROVIDING SUPPORT, EDUCATION AND PRACTICAL ADVICE ON LIVING WITH AND MANAGING BPAN; AND - EDUCATING AND RAISING AWARENESS OF BPAN AMONGST THE WIDER PUBLIC.


Argraffu manylion yr elusen