Governing document ACTION FOR BPAN

Charity Number: 1210529
Recently registered

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 17 Oct 2024

Charitable objects

THE OBJECTS OF THE CIO ARE TO PRESERVE AND PROTECT THE GOOD HEALTH OF THOSE SUFFERING FROM BETA PROPELLER PROTEIN-ASSOCIATED NEURODEGENERATION (BPAN) BY:- MAKING GRANTS TO VETTED MEDICAL PROFESSIONALS TO CARRY OUT RESEARCH FOR A CURE OR TREATMENT OF THE CONDITION AND TO PROVIDE SUPPORT TO CAREGIVERS OF THOSE WITH BETA-PROPELLER PROTEIN-ASSOCIATED NEURODEGENERATION (BPAN); PROVIDING USEFUL INFORMATION FROM UK BPAN SPECIALIST DOCTORS, SIGNPOSTING AND HELPING NAVIGATE THE SUPPORT AVAILABLE BY SHARING PERSONAL EXPERIENCES TO ENSURE THEY CAN ACCESS SERVICES THAT MAY BE BENEFICIAL TO THEM; AND PROMOTING AWARENESS AND ADVANCE THE EDUCATION OF BETA-PROPELLER PROTEIN[1]ASSOCIATED NEURODEGENERATION (BPAN) FOR THE GENERAL PUBLIC AND HEALTH PROFESSIONALS USING A VARIETY OF DIFFERENT MEDIUMS.


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