Governing document HOPE FOR HERMIONE
Governing document
It is not the full text of the charity's governing document.
CIO - FOUNDATION Registered 07 Nov 2024
Charitable objects
TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF THOSE DIAGNOSED WITH BETA-PROPELLER PROTEIN-ASSOCIATED NEURODEGENERATION (BPAN) AND THEIR FAMILIES AND CARERS BY: - GRANT FUNDING EXTERNAL ORGANISATIONS TO UNDERTAKE RESEARCH INTO ALL AREAS OF BPAN; - PROVIDING OR ASSISTING IN THE PROVISION OF EQUIPMENT, FACILITIES AND SERVICES NOT NORMALLY PROVIDED BY THE STATUTORY AUTHORITIES; - PROVIDING SUPPORT, EDUCATION AND PRACTICAL ADVICE ON LIVING WITH AND MANAGING BPAN; AND - EDUCATING AND RAISING AWARENESS OF BPAN AMONGST THE WIDER PUBLIC.
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