Register of Charities - The Charity Commission BARTH SYNDROME TRUST

Charity number: 1100835

Removed charity

Activities - how the charity spends its money

Barth syndrome is a rare life-threatening genetic disorder that affects boys. We support families and provide them with the tools for survival and quality of life. We work closely with the scientific, medical and educational community to promote early diagnosis, research and treatment. Membership is free and provides access to specialised multi-disciplinary clinics and international conferences.

Income and expenditure

Data for financial year ending 31 December 2018

Total income: £15,879

Total expenditure: £24,513

Fundraising

This charity raises funds from the public but does not work with professional fundraisers or commercial participators.

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

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