THE SCHINZEL-GIEDION SYNDROME FOUNDATION

Charity number: 1186327
Recently registered
This charity has been recently registered - it does not need to update its information until 10 months after its first financial period ends

Activities - how the charity spends its money

Proving support to families caring for a child with SGS, raising awareness of SGS and facilitating and supporting medical research that will help to improve the quality and length of life of children living with SGS.