Register of Charities - The Charity Commission EI CURE PROJECT UK

Charity number: 1205112
Recently registered
This charity has been recently registered - it does not need to update its information until 10 months after its first financial period ends

Activities - how the charity spends its money

Epidermolytic Ichthyosis (EI) is a painful genetic skin disease where the skin blisters with minimal trauma, but also grows excessively fast limiting mobility and resulting in frequent skin infections. There is no cure, and most people who are affected spend 2-4 hours caring for their skin and wounds every single day. The EI Cure Project UK is a non-profit organisation which includes patient a