Charity overview BARTH SYNDROME TRUST
Activities - how the charity spends its money
Barth syndrome is a rare life-threatening genetic disorder that affects boys. We support families and provide them with the tools for survival and quality of life. We work closely with the scientific, medical and educational community to promote early diagnosis, research and treatment. Membership is free and provides access to specialised multi-disciplinary clinics and international conferences.
Income and expenditure
Data for financial year ending 31 December 2018
Fundraising
Trading
Trustee payments
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