Governing document HARRY'S FUND
Governing document
It is not the full text of the charity's governing document.
DECLARATION OF TRUST DATED 01/06/2011
Charitable objects
TO RELIEVE THE NEEDS OF CHILDREN WITH CRI DU CHAT SYNDROME, A RARE GENETIC DISORDER LEAVING CHILDREN BORN WITH IT WITH PHYSICAL AND MENTAL DISABILITIES NEEDING CARE AND SUPPORT THROUGHOUT THEIR LIFE, IN PARTICULAR BUT NOT EXCLUSIVELY BY: - PROVIDING HELP, SUPPORT AND ADVICE TO FAMILIES FROM OUR OWN EXPERIENCE AND THOSE OF OUR MEMBERS, - PROMOTING AWARENESS AND UNDERSTANDING OF THE CRI DU CHAT SYNDROME THROUGH FUND RAISING EVENTS, SUPPORT GROUP MEETING, SCHOOL, COLLEGE'S AND UNIVERSITIES. - SUPPORTING RESEARCH THAT IS DEDICATED TO CRI DU CHAT SYNDROME. - SUPPORTING STUDENTS SEEKING A MEDICAL CAREER WITH GENETIC DISORDERS. - SUPPORTING CARERS AND PROFESSIONALS WHO CARE FOR THOSE WITH THE SYNDROME AND THEIR FAMILIES. - HELPING FUND OR PROVIDE SPECIALIST EQUIPMENT AND LEARNING AIDS TO FAMILIES, SCHOOLS OR HOSPITALS.
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