Details of the type of governing document the charity has and when it was established. It is not the full text of the charity's governing document.
CIO - Association Registered 01 May 2015 as amended on 02 Jun 2020
Charitable objects
(1) TO PROMOTE, PROTECT AND PRESERVE THE PHYSICAL AND MENTAL HEALTH OF THOSE DIAGNOSED WITH PAROXYSMAL NOCTURNAL HAEMOGLOBINURIA ("PNH") WHO RESIDE IN ENGLAND, WALES AND NORTHERN IRELAND (EITHER PERMANENTLY OR TEMPORARILY) THROUGH THE PROVISION OF SUPPORT, EDUCATION, ADVOCACY AND PRACTICAL ADVICE;
(2) TO ADVANCE THE EDUCATION OF PATIENTS WITH PNH IN ENGLAND, WALES AND NORTHERN IRELAND IN PARTICULAR BUT NOT EXCLUSIVELY BY THE PROVISION OF ADVICE AND A POINT OF CONTACT FOR NEWLY DIAGNOSED PNH PATIENTS IN ENGLAND, WALES AND NORTHERN IRELAND.
