Governing document BARTH SYNDROME UK
![](/o/charity-details-web/images/success.png)
Governing document
It is not the full text of the charity's governing document.
CIO - FOUNDATION Registered 31 Jan 2019
Charitable objects
THE RELIEF OF INDIVIDUALS WITH, AND CARRIERS OF, BARTH SYNDROME AND THEIR FAMILIES, WITHIN THE UNITED KINGDOM AND ELSEWHERE IN THE WORLD IN PARTICULAR BUT NOT EXCLUSIVELY BY: A) PROVIDING ACCESS TO INFORMATION, ADVICE AND SUPPORT IN RELATION TO THE CONDITION TO THE PUBLIC AND, IN PARTICULAR, DIAGNOSED INDIVIDUALS AND THEIR EXTENDED FAMILIES AND THOSE IN THE EDUCATIONAL, SCIENTIFIC, MEDICAL AND ALLIED HEALTH CARE PROFESSIONS. B) THE PROMOTION AND FUNDING OF RESEARCH INTO THE CAUSES AND EFFECTS OF THE CONDITION AND THE DISSEMINATION OF THE USEFUL RESULTS OF THE SAME FOR THE BENEFIT OF THE PUBLIC.
Area of benefit
WITHIN THE UNITED KINGDOM AND ELSEWHERE IN THE WORLD
Tell us whether you accept cookies
We use cookies to collect information about how you use the Charity Commission Register of Charities and Digital Services, such as pages you visit.
We use this information to better understand how you use our website so that we can improve your user experience and present more relevant content.