Details of the type of governing document the charity has and when it was established. It is not the full text of the charity's governing document.
CIO - FOUNDATION REGISTERED 17 JAN 2022
AMENDED ON 24 JUN 2024
Charitable objects
THE OBJECT OF THE CIO IS TO ADVANCE THE HEALTH OF CHILDREN AND ADULTS WITH PRIMARY CILIARY DYSKINESIA (PCD), INVOLVING INHERITED MOTILE OR NON-MOTILE CILIARY DYSFUNCTION. THE CIO WILL CARRY OUT THIS OBJECT FOR THE PUBLIC BENEFIT BY VARIOUS MEANS, INCLUDING:
• FUNDING AND SUPPORTING PURE SCIENTIFIC AND APPLIED/TRANSLATIONAL RESEARCH TO UNDERSTAND INHERITED CILIARY DYSFUNCTION;
• ADVOCATING FOR AN EFFECTIVE CARE REGIME AND THERAPIES FOR PCD; • PROVIDING PATIENT VOICE TO ENSURE THAT RESEARCH AND THERAPEUTICS REFLECT LIVED EXPERIENCES OF PEOPLE WITH PCD; AND
• RAISING AWARENESS ABOUT INHERITED CILIOPATHIES.
NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008
