Details of the type of governing document the charity has and when it was established. It is not the full text of the charity's governing document.
CONSTITUTION ADOPTED 13/04/2000
AS AMENDED ON 05/10/2008
AS AMENDED ON 15/06/2010
AS AMENDED ON 19 NOV 2016
A) PRESERVE AND PROTECT THE HEALTH AND PROMOTE THE WELFARE OF PERSONS AFFECTED BY ALL TYPES OF NEURONAL CERIOD LIPOFUSCINOSIS (NCL) COMMONLY KNOWN AS BATTEN DISEASE.
B) TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF BATTEN DISEASE AND ITS IMPLICATIONS FOR THE FAMILY.
C) TO PROMOTE RESEARCH INTO THE MANAGEMENT OF BATTEN DISEASE AND TO PUBLISH THE USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO BATTEN DISEASE.
Area of benefit
The area the charity can operate in, as set out in its governing document.